Chinese proverb

"An invisible red thread connects those who are destined to meet, regardless of time, place or circumstances. The thread may stretch or tangle but will never break."
(ancient Chinese proverb)


Friday, May 24, 2013

28 days

Today is day #28 of Audra having daily fevers.

Four weeks of fevers up to 105...every day...multiple times per day!

28 days ago I could have never imagined that her fevers would last this long.  The fevers are persistent, relentless, terrible and ugly.  Honestly, before now I didn't even know this was possible, that our body was capable of something like this.  It seems completely irrational...even crazy...to think that someone could endure this for so long.

Her fevers continue to worsen.  They are becoming more frequent again and hitting 105 three times a day...and her discomfort during them is increasing (shaking and crying).  She had bloodwork done last night and the results are not good...everything is going in the wrong direction.  For the medical people...her Hgb is 6.7, CRP is 21 and sed rate is 110.  I am anxious for the whole team of doctors to come in today and decide upon a plan.  They NEED to give her steroids soon...even if they don't know exactly what they are treating.  I am concerned that she will need a blood transfusion as well.

As we wait for a diagnosis there is one thing the doctors are sure of...this mysterious diagnosis will definitely have the word "atypical" in it.  No matter what it ends up being, this illness is in no way typical...which is why it has been so hard for them to pinpoint the diagnosis.  It's gonna be one for the books for sure!
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4 comments:

  1. sierrasmomMay 24, 2013 at 4:36 PM

    Praying for answers and relief soon!!!!

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  2. AmyMay 24, 2013 at 4:54 PM

    Continuing to pray for answers and for healing. Praying you will be strengthened as well. Thinking of you guys constantly!

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  3. AnonymousMay 24, 2013 at 5:36 PM

    Have they done a blood smear? Some parasites can only be detected on blood smear (eg Babesiosis). Praying for answers soon!

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  4. Margie Larson's Bittersweet ArtsMay 24, 2013 at 6:05 PM

    We feel so sorry for Audra and you too, Shannon and Sean. She must be so scared. It is so good that you can be there to hold her and hug her to make her feel safe. A mother's and father's love will get through to her even though she does not understand your words. Sending prayers your way. Audra has her angels watching over her, her family and the doctors and staff at CHOP. God Bless you all.

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