tuesday/wednesday

Tomorrow Audra will be admitted to CHOP.  Wednesday is her scheduled endoscopy/colonoscopy in the OR under anesthesia.  She is being admitted the day before for the bowel prep and IV hydration.  I am not sure what I am hoping for with this procedure...I suppose any news will be good news...as it will hopefully point us in the right direction of diagnosing and treating her malnutrition and bouts "tummy troubles" (to spare you the details).  I have been wanting the GI doctor to do another scope for many months now.  Audra's first scope, which was done during her admission in May, showed some abnormalities...inflammation (gastritis/colitis) and villi blunting (similar to but not exactly the same as seen in Celiac disease).  But it was difficult for GI (and the pathologists) to determine what the problem/diagnosis was.  Now that her GI doctor is telling us that tube feedings are a real possibility for Audra, I was pretty insistent that they do another scope before heading down that road.   

Turns out Audra has impeccable timing...

She has been struggling with ear infections since mid January.  Friday I took her back to the pediatrician for her follow up appointment.  And the infection still hasn't cleared up.  Now, she is on her third round of antibiotics (in addition to the daily antibiotic she takes for her kidneys).  So, 4 antibiotics in 1 months....praying that she doesn't get the C-diff infection again!  Not to mention that antibiotics are rough on her sensitive tummy...causing her not to eat as well, and spend too much time in the bathroom...which inevitably leads to weight loss.  Friday she was down one pound from two weeks prior.  Not what my little peanut needs!  So...I called her ENT doctor as soon as we got home from the pediatrician...he will see her first thing Tuesday morning before she is admitted and he may join her in the OR on Wednesday to get a better look at what's going on and do whatever he needs to. 

Kind of like a 2 for 1 deal. 
Have to keep a positive spin on it :)