Updated blog...just in time for more Audra updates

I have finally started finishing up a bunch of old posts from January and February that I had started but not finished before all of this medical/behavioral stuff with Audra started consuming our lives.  So, if your are interested scroll back to read all about:

Maura's 9th birthday,
Chinese New Year,
Aidan's arm,
snow, the circus and more !

Or if you are just here to check in on the Princess then read on...

Unfortunately the new med they started and increased, Depakote, has not helped Audra.  We have seen no improvement with any of the meds they have tried...Risperdal, Ativan or Depakote.  I have spoken with many of her doctors by phone over the past week or two and we have come to the decision to move forward with the interventions we discussed at her last neurology appointment. 

So, today we saw her neurologist in clinic then she was directly admitted to the neurology floor at CHOP.  The plan is to do a video EEG to see if the Depakote has helped "calm down" her abnormal EEG at all.  If not, they may start her on Valium to see if that helps.  She will also have a spinal tap done to send a CSF sample to Mayo Clinic to look for antibodies that indicate if she has an autoimmune encephalitis.  Her bloodwork showed a low level titer to one particular antibody but CSF is much more sensitive.  Her neurologist is considering beginning treatment for autoimmune encephalitis before the results come back, since it takes 2 weeks for results. 

Once we got to Audra's room she got all hooked up and tucked in for what is hopefully a good nights sleep of EEG monitoring.  Praying that with all this they actually find something they can actually do something about to help our sweet girl!