Last night both Audra and I slept fairly well. The drainage from her tube slowed down a bit overnight so we were feeling pretty hopeful this morning. But then, once she was awake, the drainage picked up again...for whatever reason. Today her surgeon said that she probably needs the tube for a few more days. She said some kids need the tube for 7-10 days after surgery, but she doesn't think Audra will need it for that long. Boy am I glad Audra can't understand what she said, cause she would not be happy! Tonight we tried putting the tube to gravity instead of suction to see if that would convince some of the fluid to start moving south, through her intestines. Poor baby seemed uncomfortable pretty quickly and then threw up about an hour later. So, the tube is back on suction for the night. We will probably try again tomorrow.
She wants to eat, and I mean NOW! In the playroom today she gravitated right towards the play kitchen, found herself a plastic banana and wouldn't let go of it for most of the day! Every time I take her to the bathroom to potty she points to the sink and does the sign for "drink". I can't let her look at my magazines anymore because she flips through the pages until she finds a picture of food, then points to it and looks at me with her sad little eyes.
This NPO (nothing to eat) part is the hardest! We are so used to overindulging her with food...both because she NEEDS it (at 23lbs she is still way too tiny for a six year old) and because she deserves it (for 5 1/2 years she never had unlimited access to food, with a choice of her preference none the less!) So, YES, we love to overindulge our little peanut when it comes to food.
Today Audra decided that she was a princess and she wore her crown (a foam craft type one given to her by the child life therapist)...she wore it EVERYWHERE!
walking around the unit,
in the bathroom,
when she went down to radiology for an xray,
and she even slept in it...
during each of her 3 naps today!
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