3rd SCIg infusion...
2nd one at home...
1st time on our own!
...and Audra did even better this week than last week. She still fought us getting the needle in (who wouldn't?!), but as soon as that part was done she was happy to sit in bed with us and watch TV. Trouble was she fell asleep...and 90 minutes later when the infusion was done we had to wake her up to take the needle out :(
Not the way anyone wants to get woken up...especially when you are comfy, cozy...snuggling in bed with Mommy and Daddy.
Lucky for this Mama and Baba, Audra is quick to forgive and doesn't hold a grudge.
So, snuggle time resumed!
Audra seems to be having some headaches associated with the immunoglobulin infusions. They are random, but significant. He holds her forehead and says "ow", and she rarely if ever complains of pain. One particularly bad day she was crying and inconsolable at school so we had to go pick her up. For the 24 hours before each infusion I give her lots of extra fluid in her G-tube in hopes of minimizing the side effects. I may need to start giving her Tylenol routinely too.
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