tiny but MIGHTY!

Yesterday was supposed to be Audra's bone marrow biopsy.  But she had other plans...her tiny little body wouldn't cooperate and give in to the huge doses of sedatives they gave her. Despite giving the maximal safe doses of 3 different medications she still had her eyes open and was moving around...basically laughing at the doctor's attempt to get her to sleep!  Really, no one in the room could believe it. Everyone kept shaking their heads in disbelief.  Our girl must have some amazing metabolism!  She is so much stronger than her mere 21 pounds make her look like! 

So the new plan is to do the bone marrow biopsy Monday.  She was already scheduled to go to the OR Monday for an endoscopy and colonoscopy so they will just do the biopsy then while she is under anesthesia.

That means today she had a day "off"...no tests, no blood draws and very few doctor visits.  We passed the time doing some of this:

Playing dress up

Reading gossip magazines

Taking car rides around the unit

Eating candy for breakfast, lunch AND dinner

Enjoying visits from family

The hospital had some special visitors today who went room to room...and it's a good thing Audra was sleeping at the time because we all know how terrified she was of the Disney characters.  They gave out action figure toys to all the patients, and I managed to get a picture of them at the door to Audra's room:

 

Audra had a good day today.  Her fevers were in the 102 range and she didn't feel too bad during them.  We heard lots of belly laughs from her and she was pretty playful.  It was easy to look at her today and forget all about the fevers and the crazy inflammatory process going on inside her little body.  I am looking forward to seeing her like this more often. 

Soon hopefully...I am holding onto hope that we will have an answer in the next few days.